Community

Endometriosis Support

Endometriosis can be really isolating, so it’s important to be in community with and have support from people who share similar identities and experiences that we do. Here’s some resources I’ve used or haven’t used, but have heard others recommend.

Important: I don’t know about the accuracy of all endometriosis facts/info given via these links. I recommend these specifically for community support, but encourage you to learn your endometriosis facts from the resources I’ve provided in my Endometriosis Education page.

Additionally, some of these resources may use gendered language when talking about endometriosis.

Community

Articles

Videos

  • ENDO GIRL – a short documentary on Endometriosis– “Brought to life through the medium of dance, the film is shocking, violating and takes the audience on a vulnerable journey, exposing what lies beneath the surface of one in 9 women worldwide.”

  • Endometriosis_Crusaders YouTube Page – From Dr Shilpa Rao, an endometriosis patient, and Dr Vimee Bindra, an excision surgeon.

  • Below the Belt – “In the personal & inspiring stories of four patients urgently searching for answers to mysterious symptoms, Below the Belt exposes widespread problems in our healthcare systems.”

Books

Podcasts

  • Not Cha Momma Pod – “Join Kailey and Betsy as they share their raw, honest, and personal experiences with endometriosis and adenomyosis diagnoses that led to infertility in their 30s. Despite being kid-free/less, these powerful women are finding joy in the journey and creating a community for fellow warriors who aren’t afraid to address the taboo topics that come along with a chronic illness.” They also have a monthly virtual support group on Zoom.

  • The Cycle – “A podcast about Endometriosis, with a goal not only to share endometriosis stories, but to create a community to help others who are suffering.”

  • Unheard of – This short podcast series seeks answers to some of the biggest questions posed by the endometriosis community.

  • Not Defined by Endo – “Hosted by Endometriosis Warrior Teniola Ogunro, is created for and dedicated to women who have been diagnosed with endometriosis or who suffer from symptoms that they suspect to be caused by it.”

  • Endo Worldwide – “Femninist Endo Writer and published Author (German & Polish) Martina Liel interviews Endo Advocates from all over the world to challenge myths and misconceptions about the underrecognized and underrated disease Endometriosis.”

  • Invisible Iconic Podcast – “Sharing our experiences with invisible chronic illnesses”

  • Best Worst Club – Endometriosis Life – “Best Worst Club – we all hate that we have endometriosis in common. But we couldn’t be on this journey with anybody more resilient or empathetic then the warriors that make up our club. Think of this podcast as your space to be understood, uplifted and plugged into the thriving endo- community. Join host and fellow endo warrior, Mariah Battaglia to contribute to spending awareness of our realities and calling out the systemic injustices we face.”

Helpful Products