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Endometriosis Support
Endometriosis can be incredibly isolating, so it’s important to be in community with and have support from people who share similar identities and experiences that we do.
Important: I don’t know about the accuracy of all endometriosis facts/info given via these links. I recommend these specifically for community support. I haven’t used all of the resources below and encourage you to learn your endometriosis facts from the resources I’ve provided in my Endometriosis Education page.
Additionally, some of the resources below may use gendered language when talking about endometriosis.
Community
- Project Endo – Host a Below the Belt movie screening, or send a THINK ENDO tool kit to a front line medical provider
- Endo Siblings Support Group: for Trans and Enby People with Endometriosis – FB group.
- Endometriosis South Coast – an inclusive charity set up to support people who are going through the diagnosis stages of Endometriosis and Adenomyosis or have been diagnosed with the conditions.
- ENDO Black – “Endo Black, Inc. is a black-women-led organization advocating for African American women and women of color affected by endometriosis.”
- The Hysteria Project – “is a one-on-one storytelling program for people with menstruation and pelvic disorders.”
Videos
- ENDO GIRL – a short documentary on Endometriosis– “Brought to life through the medium of dance, the film is shocking, violating and takes the audience on a vulnerable journey, exposing what lies beneath the surface of one in 9 women worldwide.”
- Not Normal – “The filmmaker combines photos of nature, self portraits, and archive images to form 213 moving digital collage to tell her story. It shares information to explore menstruation and the implications of dismissing a woman’s pain… It highlights the urgency for change in health access for the often dismissed [endometriosis patient]”.
- Below the Belt – “In the personal & inspiring stories of four patients urgently searching for answers to mysterious symptoms, Below the Belt exposes widespread problems in our healthcare systems.”
- ALL UP THERE – “20-something Eilidh desperately seeks answers from her GP after debilitating pain presses pause on her life.”
- Walking Through Walls – “Navigating the mindfield of endometriosis and adenomyosis.”
- Invisible Pain, Visible Women – “A powerful women’s health documentary that centers the lived experiences of Vincentian women living with endometriosis, adenomyosis, polycystic ovarian syndrome (PCOS), and uterine fibroids.”
Books
- Finding Peace with a Devastating Disease: Reflections on Endometriosis by Amy Corfeli (this is my book)
- The Palgrave Handbook of Critical Menstruation Studies– Multi-disciplinary, genre-spanning and critical examination of the cultural, psychological, political and social aspects of menstruation. Open access and free.
- BLEED: Destroying Myths and Misogyny in Endometriosis by Tracy Lindeman
- Good Girl, Bad Period.: Breaking the Silence on Misogyny and Gaslighting through the Lens of Endometriosis by Silvia Young
- Endo Violence Collective – Check out their Magazyns as well as their book EndoViolence: [co]defining endometriosis related injustices
- August Blues: Endometriosis, Depression, Chronic Pain and eventually…Hope. by Sheridan Blake.
- My Invisible Friends – a children’s book by Nikki Box
- Endometriosis from Harm to Hope: A Chronic Illness Guide by Casey Berna
Podcasts
- In Sixteen Years of Endometriosis – “Laugh, cry, and shout with us as we talk all things endometriosis.” (This is my podcast)
- Invisible Iconic Podcast – “Sharing our experiences with invisible chronic illnesses”
- Endo Battery – “Charging our life when Endo drains us. Talking all things Endometriosis and Adenomyosis, from the things that help us recharge and identifying the things that drain us.”
- Endo Thick of It with Brandon and Kimether – “Endo Thick of It! The Podcast for couple navigating endometriosis and other chronic illnesses.”
- EndoKind – “This podcast is about stories. It tells a story, and it’s made up of stories. Because storytelling creates connection. And I’m fully convinced that connection can change the world.”
- Mind Over Endo Pain – “A science-based mindfulness meditation resource, designed to help manage endometriosis pain, anxiety, and stress
Games
- Endo Quest – “Endo Quest is a game designed to help you learn about Endometriosis in a fun and interactive way. The game is played as a character named Evania who is a young Endometriosis patient in her early 20s, who is yet to be diagnosed conclusively. Each level educates the player on one aspect of Endometriosis.”
Helpful Products
- Innabox Design – Cute and witty gifts for spoonies!
- Spicey – Clean heat therapy for every body in pain