Endometriosis Support

Endometriosis can be really isolating, so it’s important to be in community with and have support from people who share similar identities and experiences that we do. Here’s some resources I’ve used or haven’t used, but have heard others recommend.

Important: I don’t know about the accuracy of all endometriosis facts/info given via these links. I recommend these specifically for community support, but encourage you to learn your endometriosis facts from the resources I’ve provided in my Endometriosis Education page.

Additionally, some of these resources may use gendered language when talking about endometriosis.

Community

Instagram

Head to my Instagram and see my story highlight “to follow”.

Articles

Videos

  • ENDO GIRL – a short documentary on Endometriosis– “Brought to life through the medium of dance, the film is shocking, violating and takes the audience on a vulnerable journey, exposing what lies beneath the surface of one in 9 women worldwide.”

  • Not Normal“The filmmaker combines photos of nature, self portraits, and archive images to form 213 moving digital collage to tell her story. It shares information to explore menstruation and the implications of dismissing a woman’s pain… It highlights the urgency for change in health access for the often dismissed [endometriosis patient]”.

  • Below the Belt – “In the personal & inspiring stories of four patients urgently searching for answers to mysterious symptoms, Below the Belt exposes widespread problems in our healthcare systems.”

  • ALL UP THERE – “20-something Eilidh desperately seeks answers from her GP after debilitating pain presses pause on her life.”

  • Barbados Association of Endometriosis & P.C.O.S – YouTube page.

Books

Podcasts

  • Invisible Iconic Podcast – “Sharing our experiences with invisible chronic illnesses”

  • Endo Thick of It with Brandon and Kimether – “Endo Thick of It! The Podcast for couple navigating endometriosis and other chronic illnesses.”

  • Not Cha Momma Pod – “Join Kailey and Betsy as they share their raw, honest, and personal experiences with endometriosis and adenomyosis diagnoses that led to infertility in their 30s. Despite being kid-free/less, these powerful women are finding joy in the journey and creating a community for fellow warriors who aren’t afraid to address the taboo topics that come along with a chronic illness.” They also have a monthly virtual support group on Zoom.

  • Not Defined by Endo – “Hosted by Endometriosis Warrior Teniola Ogunro, is created for and dedicated to women who have been diagnosed with endometriosis or who suffer from symptoms that they suspect to be caused by it.”

  • Endo Worldwide – “Femninist Endo Writer and published Author (German & Polish) Martina Liel interviews Endo Advocates from all over the world to challenge myths and misconceptions about the underrecognized and underrated disease Endometriosis.”

  • Endo Battery – “Charging our life when Endo drains us. Talking all things Endometriosis and Adenomyosis, from the things that help us recharge and identifying the things that drain us.”

  • DEARG: Delivering Endometriosis and Adenomyosis Resources and Guidance – “This podcast brings you evidence-based insights, interviews with leading experts, and practical advice for navigating the challenges of living with endometriosis and adenomyosis in Ireland.”

Helpful Products

  • Eighty-Six the Endo Weekly Planner – This planner “was made to help you thrive in all aspects of life, because you deserve to have a tool that can help you tackle life with endometriosis.”

  • Fierce Fearless Apparel – Endometriosis, Chronic Illness, & Mental Health Apparel

  • Innabox Design – Cute and witty gifts for spoonies!

  • Emma Valentina – Comfortable, elegant pants with heating pad pockets built in, heating pads, and more.