Feel supported, get inspired, be understood

Laugh, cry, and shout with us as we talk all things endometriosis.

I’m Amy (she/her), and I started the podcast In Sixteen Years of Endometriosis to talk about different facets of endometriosis. While I do some interviews with excision surgeons and endometriosis advocates, in most episodes it’s me and my witty best friend Brittany (she/they) talking about a broad range of topics:

  • Practical tips. Want more energy? Want to commit to new habits or communicate better about your illness with loved ones?
  • Facts around the disease. What are the types of endo? The stages? Why does it cause fatigue and pain? What causes endo? Where can it be in the body? What myths and misconceptions are prevalent around endo?
  • Common treatment and management options. Why is excision the gold standard? How do we find an endometriosis specialist? What does research say on Lupron, Orilissa, and birth control? What role can diet and lifestyle play?
  • Resiliency. It astounds me how much we go through. Do you know how strong you are to live with this awful disease?
  • Acceptance. Sometimes there are moments that are absolutely unbearable. We talk candidly about the anger, shame, sadness, and other feelings endo can bring, and how to get through them to find peace, gratitude, and joy.

Brittany and I pride ourselves on sharing accurate, well-researched information, which is necessary for this disease where misinformation is the norm, even from many well-intentioned doctors themselves! We share disease facts with a side of humor, personify endometriosis, and also delve into all those embarrassing did-that-really-just-happen?! stories. (And yes, they definitely did happen…)

Wherever you are in your own health journey, Brittany and I hope our podcast will help you feel more supported and empowered. If you take away anything from our podcast, we want you to know that you are not alone! There is a whole community of people out there who share similar experiences, even though illness and pain can feel incredibly isolating at times.

Important note on inclusive language:

We had not yet been educated about inclusive language when we began our podcast; however, after we learned about using language to be inclusive in our lives and communities, we used this language midway through the show and going forward. We also interviewed 2 non-binary people with endometriosis on the importance of inclusivity, in episode 64 and 72. Although our language in our earliest episodes is not inclusive, please know that we welcome all people of all gender identities here.

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  • Culture
  • Disease Facts
  • Food
  • Life with Endo
  • Medical Care
  • Mentality
  • Other
  • Pain

Ep97: Endometriosis Care – A Chat with Soha Wahb, founder of Endo In Arabic

Soha Wahb (she/her) is a Lebanese medical student at the American University of Beirut, and founder of “Endo In Arabic”, an initiative that aims to provide accurate information about...

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Ep96: The Psychological Toll of Medical Gaslighting

We talk about some common examples of medical gaslighting that we may have heard from our doctors, and delve into the psychological toll it can take on us. CONNECT...

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Ep95: What are Endometriosis Guidelines? Interview with Kate Boyce

There are various endometriosis guidelines worldwide which guide gynecologists in treating endometriosis and set the standard of care. Amy speaks with Kate Boyce (she/her), who is the co-founder of...

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Ep94: The Medical vs Social Model of Disability. Part 2

We talk about the medical and the social model of disability, and our thoughts on how it applies to endometriosis and chronic illness in general. These 2 models, which...

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Ep93: The Medical vs Social Model of Disability. Part 1

Like all things in life, there are many perspectives and ways of looking at disability and the social, political, cultural, and economic factors that define it. Two of the...

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Ep92: Hormonal Medication Options for Endometriosis

In episode 91, we talked at length about how no hormonal medications actually treat the disease, in spite of this prevalent misinformation among the medical community. Excision is the...

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