Feel supported, get inspired, be understood

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Laugh, cry, and shout with us as we talk all things endometriosis.

I’m Amy (she/her), and I started the podcast In Sixteen Years of Endometriosis to talk about different facets of endometriosis. While I do some interviews with excision surgeons and endometriosis advocates, in most episodes it’s me and my best friend Brittany (she/they) talking about a broad range of topics.

Brittany and I pride ourselves on sharing accurate, well-researched information, which is necessary for this disease where misinformation is the norm, even from many well-intentioned doctors themselves! We share disease facts with a side of humor, personify endometriosis, and also delve into all those embarrassing did-that-really-just-happen?! stories. (And yes, they definitely did happen…)

*If you come across any misinformation on my podcast or website, please reach out to me so I can look into it and correct it.

Wherever you are in your own health journey, Brittany and I hope our podcast will help you feel more supported and empowered. If you take away anything from our podcast, we want you to know that you are not alone! There is a whole community of people out there who share similar experiences, even though illness and pain can feel incredibly isolating at times. One of the most common compliments we receive about our show is “I feel like someone finally understands me” or “Listening to you feels like I’m hanging out with friends that support me”.

On our podcast, you’ll find:

Facts around the disease

What are the types of endometriosis? The stages? Why does it cause fatigue and pain? What causes endometriosis? Where can it be in the body? What myths and misconceptions are prevalent around endometriosis?

You will also find accurate information about endometriosis on my website!

Common treatment and management options

Why is excision the gold standard? How do we find an endometriosis specialist? What does research say on Lupron, Orilissa, and birth control? What role can diet and lifestyle play?

Mental health discussions

Living with endometriosis is taxing on us emotionally. The pain and symptoms can be unbearable at times, and finding healthy coping mechanisms is vital. We talk candidly about the anger, shame, sadness, and other feelings endometriosis can bring, and how to get through them to find peace, gratitude, and joy.

Practical tips

Want more energy? Want to commit to new habits or communicate better about your illness with loved ones?

Important note on being inclusive

Endometriosis affects people of all genders and sexes, including cis-women, nonbinary people, trans people, gender non-conforming people, intersex people, and cis-men. Unfortunately, when we began our podcast, we were not yet aware of this, and in a few of our earliest episodes, we referred to women with endometriosis. (Mainly episodes 7, 15, and 16 – these episodes now have a content warning on them for gendered language.) Once we learned that endometriosis is not a woman’s disease, we changed to inclusive language and have been actively working to educate ourselves further on this.

To highlight more voices and experiences within our endometriosis community, and to spread awareness that endometriosis can affect people of all genders and sexes, we interviewed 2 non-binary people with endometriosis on the importance of inclusivity, in episode 64 and 72, and plan to do further interviews with gender-diverse people.

Please know that we welcome all people of all gender identities and expressions here. Including all people with endometriosis in conversations about the disease is vital because it’s important to have a safe and inclusive space when talking about endometriosis, which can help people feel seen as well as access medical care.

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112: Why Representation Matters within the Endo Community, with Julia Mandeville of Barbados

Today we are so excited to speak with Julia Mandeville. Julia is the co-founder of the Barbados Association of Endometriosis & P.C.O.S. She is currently a doctoral student and...

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111: The Grief of Chronic Illness

We talk about the grief that can accompany having a chronic illness. When endometriosis causes us ongoing losses in multiple aspects of our life, over and over again, it’s...

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110: Interview: Endo Standard of Care with Arti Shah of Kenya

We speak with Arti Shah (she/her), a content creator and a dedicated endometriosis advocate actively engaged in the endometriosis space in Kenya and beyond. Her conviction and commitment is...

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109: Surgeon Interview: Adhesions with Excision Surgeon Dr. Dulemba

We interview Dr Dulemba, an excision surgeon who has been in private practice in Denton, Texas, since 1986. He’s performed over 7300 endometriosis surgeries, so he has a lot...

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Ep108: Advocacy Mistakes We’ve Made and Tips for Endo Advocacy

We’ve had this podcast for over 4 years! Recently, I listened to our episodes 1-50 to update them where necessary, and I saw how much our advocacy has changed...

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Ep107: Interview: How to Find an Excision Surgeon with Kate Boyce, BCPA

We speak with Kate Boyce (she/her), who is the co-founder of the Instagram and webpage EndoGirlsBlog, which provides accurate information to people with endometriosis. Kate is a board certified...

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