Feel supported, get inspired, be understood

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Laugh, cry, and shout with us as we talk all things endometriosis.

I’m Amy (she/her), and I started the podcast In Sixteen Years of Endometriosis to talk about different facets of endometriosis. While I do some interviews with excision surgeons and endometriosis advocates, in most episodes it’s me and my witty best friend Brittany (she/they) talking about a broad range of topics:

  • Practical tips. Want more energy? Want to commit to new habits or communicate better about your illness with loved ones?

  • Facts around the disease. What are the types of endometriosis? The stages? Why does it cause fatigue and pain? What causes endometriosis? Where can it be in the body? What myths and misconceptions are prevalent around endometriosis?

  • Common treatment and management options. Why is excision the gold standard? How do we find an endometriosis specialist? What does research say on Lupron, Orilissa, and birth control? What role can diet and lifestyle play?

  • Resiliency. It astounds me how much we go through. Do you know how strong you are to live with this awful disease?

  • Acceptance. Sometimes there are moments that are absolutely unbearable. We talk candidly about the anger, shame, sadness, and other feelings endometriosis can bring, and how to get through them to find peace, gratitude, and joy.

Brittany and I pride ourselves on sharing accurate, well-researched information, which is necessary for this disease where misinformation is the norm, even from many well-intentioned doctors themselves! We share disease facts with a side of humor, personify endometriosis, and also delve into all those embarrassing did-that-really-just-happen?! stories. (And yes, they definitely did happen…)

Wherever you are in your own health journey, Brittany and I hope our podcast will help you feel more supported and empowered. If you take away anything from our podcast, we want you to know that you are not alone! There is a whole community of people out there who share similar experiences, even though illness and pain can feel incredibly isolating at times.

Important note on inclusive language:

Endometriosis affects people of all genders and sexes, including cis-women, nonbinary people, trans people, gender non-conforming people, intersex people, and cis-men. Unfortunately, when we began our podcast, we were not yet aware of this, and in a few of our earliest episodes (mainly episodes 7, 15, and 16), we referred to women with endometriosis. Once we learned that endometriosis is not a woman’s disease, we changed to inclusive language and have been actively working to educate ourselves further on this.

To highlight more voices and experiences within our endometriosis community, and to spread awareness that endometriosis can affect people of all genders and sexes, we interviewed 2 non-binary people with endometriosis on the importance of inclusivity, in episode 64 and 72, and plan to do further interviews with gender-diverse people.

Please know that we welcome all people of all gender identities and expressions here. Including all people with endometriosis in conversations about the disease is vital because it’s important to have a safe and inclusive space when talking about endometriosis, which can help people feel seen as well as access medical care.

  • All
  • Culture
  • Disease Facts
  • Food
  • Life with Endo
  • Medical Care
  • Mentality
  • Other
  • Pain

Ep99: Endometriosis Care – A Chat with Olivia Nwankudu, Founder/Executive Director of ESIF

Olivia Nwankudu (she/her) is an endometriosis advocate and Founder of EndoSurvivors International Foundation (ESIF); a non-profit organization focused on raising awareness about endometriosis, educating the public about endometriosis, and...

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Ep98: Identifying as Disabled

We continue our series on disability by talking about identifying as disabled with endometriosis, internalized ableism, invisible or non-apparent disability, the social vs the medical model of disability, and...

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Ep97: Endometriosis Care – A Chat with Soha Wahb, founder of Endo In Arabic

Soha Wahb (she/her) is a Lebanese medical student at the American University of Beirut, and founder of “Endo In Arabic”, an initiative that aims to provide accurate information about...

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Ep96: The Psychological Toll of Medical Gaslighting

We talk about some common examples of medical gaslighting that we may have heard from our doctors, and delve into the psychological toll it can take on us. CONNECT...

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Ep95: What are Endometriosis Guidelines? Interview with Kate Boyce

There are various endometriosis guidelines worldwide which guide gynecologists in treating endometriosis and set the standard of care. Amy speaks with Kate Boyce (she/her), who is the co-founder of...

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Ep94: The Medical vs Social Model of Disability. Part 2

We talk about the medical and the social model of disability, and our thoughts on how it applies to endometriosis and chronic illness in general. These 2 models, which...

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