Para leerlo en español, clic aquí.
Welcome to In Sixteen Years.
This is a website and podcast devoted to endometriosis education, support, and advocacy.
The standard of care for endometriosis is disgraceful.
Especially for a disease that affects 200 million people worldwide. More people suffer from endometriosis than Alzheimer’s, Lupus, Multiple Sclerosis, Inflammatory Bowel Disease, Rheumatoid Arthritis, and Parkinson’s Disease combined – yet most of the general population has never heard of endometriosis. This is not okay!
We need a cure. We need recognition. We need to go to the doctor and be taken seriously when we say we are terrified to get our periods because of the crushing pain that it brings. We need funding for endometriosis research – research that isn’t focused on proving the outdated theory of retrograde menstruation. We need education in schools and even among doctors that period pain is not normal, painful sex is not normal, and painful bowel movements are not normal. Gastrointestinal doctors should be trained further investigate into symptoms that appear to be IBS in people assigned female at birth, especially if symptoms flare around the menstrual cycle. Emergency room doctors should understand that excruciating pelvic pain, especially on one’s period, can be caused by endometriosis and inform the patient that it could be a reason for their pain.
It shouldn’t take 10+ years to be diagnosed with such a common disease.
And once diagnosed, we should have access to excision to remove the disease from our bodies (if that’s what we want), instead of being offered subpar treatments based on misinformation. Some doctors even refuse to treat people with endometriosis who are not experiencing infertility or trying to get pregnant, completely disregarding that symptoms such as pain, fatigue, and digestive problems severely diminish our quality of life.
Not only do endometriosis patients grapple with chronic and often debilitating pain that ravages our lives, often affecting our relationships, our careers, and our mental well-being, but we face dismissal and lack of education from the very medical professionals who we are supposed to turn to for help. The psychological impact on us is double. We are weighed down by the debilitating symptoms and lack of treatment, and weighed down again by being told that it isn’t real and that we should see a psychologist for what these medical professionals perceive as “anxiety.”
Many of us with endometriosis begin having symptoms from 9, 10, 12 years old.
It’s heartbreaking to me that from such a young age, we go through so many trials and tribulations because we are fighting not only against endometriosis, but against a system of misinformation, dismissive doctors, lack of access to expert care, all while battling the pain, fatigue, nausea, doubt, and more.
The endometriosis community is an incredible group of people, and we will keep advocating so that future generations don’t have to suffer as we have.
About my advocacy
I hope my content can help inspire you, educate you, empower you, validate you, and help you feel supported.
I pride myself on having well-researched, evidence-based information on endometriosis. If you believe you’ve found misinformation on any of my pages, please contact me!
Explore the menu to find:
- Accurate, educational information on endometriosis, and how to treat/manage it from a full body approach.
- My podcast on endometriosis, which has over 100 episodes: laugh, cry, and shout with me and my guests about endometriosis.
- My book, which is an exploration of finding peace with this illness, and includes self-guided journaling prompts.
- Spanish translations of almost all pages on my website.
- A second podcast I host in Spanish on endometriosis.
Para leerlo en español, clic aquí.
Important note on being inclusive
Endometriosis affects people of all genders and sexes. I welcome all people of all gender identities and expressions here. Including all people with endometriosis in conversations about the disease is vital because it’s important to have a safe and inclusive space when talking about endometriosis, which can help people feel seen as well as access medical care.
My content is educational information only and not medical advice.
Remember, the information on my website, podcast, Instagram, and any other ways I communicate and/or produce content is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan for endometriosis or any other health problems. See my full disclaimer here.
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