Endometriosis Education
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Remember, the information on my website, podcast, Instagram, and any other ways I communicate and/or produce content is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan for endometriosis or any other health problems. See my full disclaimer here.
There is a lot of misinformation out there about endometriosis
Myths and incorrect information continue to be perpetuated by:
- national organizations
- medical websites from prestigious hospitals
- well-meaning doctors
- national leading bodies like ACOG/RANZCOG
- endometriosis guidelines
- endometriosis advocates
- research studies
e also need to careful when looking at official endometriosis treatment guidelines, national endometriosis organizations, and campaigns (in various countries) – there are often biases, influences, and hidden agendas we may not be aware of that taint the information provided. National endometriosis organizations (again, in various countries) may be helpful to provide support, local meet ups, lifestyle tips, recipes, etc, but more often than not, their information on endometriosis is outdated, especially when it comes to the cause and treatment of endometriosis.
That’s why it’s really important to make sure that you get your endometriosis education from a trustworthy source. The following resources are all ones that I rely on and personally trust for accurate information. Of course, this list doesn’t include of all of the fantastic resources available, but it’s a good starting place to build from.
Some great websites
- Endometriosis: a Complex Disease – Excellent overview of endometriosis from the Center for Endometriosis Care. Also explore their online library of resources on endometriosis! “Led by internationally renowned endometriosis expert Ken Sinervo, MD, MSc, FRCSC, ACGE, the CEC is a global leader in the care and treatment of the disease.”
- Endometriosis: One Step at a Time – Free endometriosis course by 2 amazing advocates. “Learn the FACTS from top endometriosis healthcare providers, excision surgeons, and advocates, and how to identify false information so that you can be empowered to make the best decisions for YOU.”
- Nancy’s Nook – This website is down right now. Hopefully this “endometriosis learning library” comes back online soon.
- Eighty-Six the Endo – Run by Melissa, a fellow endometriosis warrior and registered nurse, she shares “endometriosis education, tips, nutrition info, and the raw reality of what it means to have endometriosis.” Some highlights of her website: How she got insurance to approve her excision surgery and a printable list of questions to ask your excision surgeon.
- Pacific Endometriosis and Pelvic Surgery – Easy to understand articles on endometriosis in the Education section.
- ExtraPelvic Not Rare – While many doctors state that endometriosis is rarely found outside of the reproductive organs, endometriosis on the intestines, bladder, lungs, diaphragm, and other locations is actually not as rare as we have been lead to believe. This website has educational videos on extrapelvic endometriosis, a downloadable e-book, info on the disease by body system, and more.
- Endometriosis: One Step at a Time – “Learn the FACTS from top endometriosis excision surgeons and advocates, and how to identify false information so that you can be empowered to make the best decisions for YOU.”
- Endopaedia – a German/English scientific information platform on endometriosis, with an excellent summary of important recent research articles.
Videos
- Endometriosis Summit YouTube Page – “Uniting Patients, Practitioners, & Doctors to Move Endometriosis Forward.”
Books
- Endometriosis: Putting the Pieces Together for a Better Life by Amy Corfeli, Andrea Ruiz, Virginia Vallejo, and Jennifer Mier-Cabrera (this is my book!)
- Endometriosis: Understand your symptoms, get the right treatment, reclaim your life by Jen Moore
- Endometriosis from Harm to Hope: A Chronic Illness Guide by Casey Berna
Facebook Groups
- ExtraPelvicNotRare – Great group for people with extra pelvic endometriosis.
- Nancy’s Nook – People have different opinions about the Nook. A lot of people have found it to be an integral part of their endometriosis journey. It’s not a support group, and their “purpose is to educate patients, practitioners, and their loved ones about endometriosis with evidence based information and resources.”
Podcasts
- In Sixteen Years of Endometriosis – Great source for endometriosis education and interviews with surgeons, patient, and subject experts. (Note: This is my podcast!)
- EndoBattery – Excellent podcast from Alanna with surgeons, patients, and subject experts.
- The Vocal Pelvic Floor with Dr. Ginger Garner – The episodes from 2025 are a season on endometriosis with a great guest line up!