Research Used in Our Episodes

Ep 3 – 9 Tips for Better Medical Care

  • Full show notes to this episode here.

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Ep 15 – What Causes Endometriosis?

  • Endopaedia.info – Origin – Here you can find several links on theories of origin, including Mulleriosis, Sampson’s theory of retrograde menstruation, and HOX genes.

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Ep 19 – Endometriosis and the Workplace

  • FMLA – Family and Medical Leave Act. If in the United States, you may be able to protect your job by putting this in place to take time off for surgery or to miss periodic days throughout the month due to flares.

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Ep 22 – Bowel Endometriosis

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Ep 35 – Endo, IBS, and Digestive Problems. Part 1

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Ep 38 – Understanding the Types of Endometriosis

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Ep 41 – Improving Gut Health

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Ep 44 – It’s Not in Your Head: Medicine’s Sex and Gender Bias. Part 1

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Ep 45 – Racial Bias in Healthcare

Sources:

Resources:

  • Not Defined by Endo – A podcast on endometriosis in which Teniola Ongunro (who co-hosts this episode on racial bias with me) interviews endometriosis specialists and advocates. Topics have included infertility, painful sex, pelvic pain, PCOS, nutrition, and more. Not all the episodes are currently on her website, so definitely check it out in your favorite podcast app!

  • ENDO Black – “A platform that was designed to connect women of color affected by endometriosis together. The goals are: to create a safe atmosphere for those affected by endometriosis; to foster endo-sisterly love across the globe; and to facilitate opportunities for constant dialogue on the topic of women’s reproductive health for African American women and women of color, as well as policies, laws, and regulations that affect women and their reproductive health.” They have information, videos, ambassadors, blog posts, events, and more! Also on Instagram.

  • Myths and Misconceptions Perpetuating Racism in Endometriosis, Infertility, and Pelvic Pain. – Fantastic article which features several Black womxn and their experiences and advice on navigating endo. The article has links to all of their platforms on social media, so you can follow them, as well as links to the two videos of the in depth discussions they had together on these topics, the content from which the article is based upon.

  • Black Man in a White Coat Book by Damon Tweedy

  • Ted Talks: The Link Between Health and Racism – There are several videos here on racism and health care.

  • White Fragility: Why It’s So Hard for White People to Talk About Racism Book by Robin DiAngelo.

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Ep 46 – Why Science Knows Less About the Female Body

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Ep 47 – The Limitations of the Endometriosis Staging System

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Ep 48 – Why is Womxn’s Pain Dismissed?

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Ep 50 – But Doctor, It’s Not Psychosomatic!

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Ep 52 – How Sleep Affects Our Health and Pain Levels

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Ep 55 – Endometriosis and Estrogen

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Ep 56 – Endometriosis is NOT the Endometrium. Part 1

Ep 57 – Endometriosis is NOT the Endometrium. Part 2

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Ep 58 – Endometriosis Interview with Heather Guidone, BCPA, CEC Program Director

  • The Palgrave Handbook of Critical Menstruation Studies – “Multi-disciplinary, genre-spanning and critical examination of the cultural, psychological, political and social aspects of menstruation.” Editors: Chris Bobel, Inga T. Winkler, Breanne Fahs, Katie Ann Hasson, Elizabeth Arveda Kissling, Tomi-Ann Roberts.

  • Center for Endometriosis Care – “Led by internationally renowned endometriosis expert Ken Sinervo, MD, MSc, FRCSC, ACGE, the CEC is a global leader in the care and treatment of the disease. As one of the first dedicated centers of expertise in endometriosis in the world, founded thirty years ago by Dr Robert B. Albee, Jr., we have provided compassionate care to thousands of patients from more than sixty countries. We are also staunch disease advocates and educators. The CEC is a pioneer in Laparoscopic Excision (LAPEX) – the surgical cornerstone of a multidisciplinary approach to effective disease management. Dr Sinervo & Dr Arrington specialize in all forms of endometriosis, including extrapelvic and deep/complex disease.

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