Articles/Research Used in Our Episodes
For much of the research for our podcast, I rely on the resources listed on our Resources page, so definitely explore them! You’ll find resources for endometriosis, IC, Lupron/Orilissa, endo diet and more!
In this section, I will put key resources used in the episodes (not all though, since many are listed in the Resources page), in case you want to find a specific study or article we mentioned in the episode. These are also great to browse and learn more about endo as well! I will update with each new episode when it airs.
- Ep 3 – 9 Tips for Better Medical Care
- Ep 15 – What Causes Endometriosis?
- Ep 19 – Endometriosis and the Workplace
- Ep 22 – Bowel Endometriosis
- Ep 35 – Endo, IBS, and Digestive Problems. Part 1
- Ep 38 – Understanding the Types of Endometriosis
- Ep 41 – Improving Gut Health
- Ep 43 – Rethinking the Name and Definition of Endometriosis
- Ep 44 – It’s Not in Your Head: Medicine’s Sex and Gender Bias. Part 1
- Ep 45 – Racial Bias in Healthcare
- Ep 46 – Why Science Knows Less About the Bodies of People Assigned Female at Birth
- Ep 47 – The Limitations of the Endometriosis Staging System
- Ep 48 – Why is Pain Dismissed in People Assigned Female at Birth?
- Ep 50 – But Doctor, It’s Not Psychosomatic!
- Ep 52 – How Sleep Affects Our Health and Pain Levels
- Ep 55 – Endometriosis and Estrogen
- Ep 56 – Endometriosis is NOT the Endometrium. Part 1
- Ep 57 – Endometriosis is NOT the Endometrium. Part 2
- Ep 58 – Endometriosis Interview with Heather Guidone, BCPA, CEC Program Director
- Ep 59 – Endometriosis Interview (Part 1) with Wendy Bingham DPT, Founder of ExtraPelvic Not Rare
- Ep 60 – Endometriosis Interview (Part 2) with Wendy Bingham DPT, Founder of ExtraPelvic Not Rare
Ep 15 – What Causes Endometriosis?
- Endopaedia.info – Origin – Here you can find several links on theories of origin, including Mulleriosis, Sampson’s theory of retrograde menstruation, and HOX genes.
Ep 19 – Endometriosis and the Workplace
- FMLA – Family and Medical Leave Act. If in the United States, you may be able to protect your job by putting this in place to take time off for surgery or to miss periodic days throughout the month due to flares.
Ep 22 – Bowel Endometriosis
- Endopaedia.info – Rectovaginal and gastrointestinal – Links here to a few articles on the topic.
- Bowel Endometriosis – Article on Center for Endometriosis website.
- Bowel Disease – Article on Pacific Endometriosis and Pelvic Surgery website.
Ep 35 – Endo, IBS, and Digestive Problems. Part 1
- Constipation, SIBO & Other GI Issues Can Be A Red Flag For This Condition – This article has an except from the book Beating Endo, by Iris Orbuch and Amy Stein. However, prior to the excerpt, the definition of endo is wrong, so keep that in mind.
- Yuan M, Li D, Zhang Z, Sun H, An M, Wang G. Endometriosis induces gut microbiota alterations in mice. Hum Reprod. 2018 Apr 1;33(4):607-616. doi: 10.1093/humrep/dex372. PMID: 29462324.
- Mathias JR, Franklin R, Quast DC, Fraga N, Loftin CA, Yates L, Harrison V. Relation of endometriosis and neuromuscular disease of the gastrointestinal tract: new insights. Fertil Steril. 1998 Jul;70(1):81-8. doi: 10.1016/s0015-0282(98)00096-x. PMID: 9660426.
- Endo Belly – Vital Health Endometriosis Center blog post.
- Endometriosis and Gastrointestinal symptoms – Article by Dr. Iris Orbuch, co-author of Beating Endo.
Ep 38 – Understanding the Types of Endometriosis
- Endopaedia.info – Cystic Ovarian Endometrioma – Links to two articles on the topic.
- Isolated Ovarian Endometrioma: A History Between Myth and Reality – Caterina Exacoustos, MD, PhD, Giovanna De Felice, MD, Alessandra Pizzo, MD, Gabriele Centini, MD, Emilio Piccione, MD, Errico Zupi, MD. January 15, 2018. DOI: https://doi.org/10.1016/j.jmig.2017.12.026
- Koninckx PR, Oosterlynck D, D’Hooghe T, Meuleman C. Deeply infiltrating endometriosis is a disease whereas mild endometriosis could be considered a non-disease. Ann N Y Acad Sci. 1994 Sep 30;734:333-41. doi: 10.1111/j.1749-6632.1994.tb21763.x. PMID: 7978935.
- Ovarian Endometriosis – Article on Center for Endometriosis website.
- Donnez J, Nisolle M, Smoes P, Gillet N, Beguin S, Casanas-Roux F. Peritoneal endometriosis and “endometriotic” nodules of the rectovaginal septum are two different entities. Fertil Steril. 1996 Sep;66(3):362-8. PMID: 8751730.
- What if deep endometriotic nodules and uterine adenomyosis were actually two forms of the same disease? – Jacques Donnez, M.D., Ph.D., Marie-Madeleine Dolmans, M.D., Ph.D., Latifa Fellah, MD. February 02, 2019 DOI: https://doi.org/10.1016/j.fertnstert.2018.12.018
Ep 41 – Improving Gut Health
- Alcock J, Maley CC, Aktipis CA. Is eating behavior manipulated by the gastrointestinal microbiota? Evolutionary pressures and potential mechanisms. Bioessays. 2014;36(10):940-949. doi:10.1002/bies.201400071
- Your Gut Microbiome and Anxiety: What’s the Connection? – Article on Dr. Chris Kresser’s website.
- Gut Health – I highly recommend this detailed, free downloadable e-book by Dr. Chris Kresser.
- P Vigano, M Candiani, A Monno, E Giacomini, P Vercellini, E Somigliana, Time to redefine endometriosis including its pro-fibrotic nature, Human Reproduction, Volume 33, Issue 3, March 2018, Pages 347–352, https://doi.org/10.1093/humrep/dex354
- David Redwine, MD – Origin of Endometriosis: Cartoon Science vs Evidence-based Medicine – Talk by Dr. David Redwine, excision specialist.
- Is endometriosis an autotransplant? – Article on Endopaedia.info. Here you can see a table with differences between endometriosis and the endometrium in humans.
- Diagnostic value of hemosiderin laden macrophages in histologically proven endometriosis – M.A. Bedaiwy, S. Gupta, J. Noriega, J. Brainard, A. Agarwal, T. Falcone. September 01, 2008. DOI: https://doi.org/10.1016/j.fertnstert.2008.07.1133
Ep 44 – It’s Not in Your Head: Medicine’s Sex and Gender Bias. Part 1
- Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick by Maya Dusenbery
- Pain and Prejudice by Gabrielle Jackson
- Why medicine often has dangerous side effects for women – Ted Talk by Alyson McGregor, who studies the health of people assigned female at birth.
- Gender Bias in Medical Research: How It Operates and Why It Matters – General overview of gender and sex bias.
- Regulations, Guidance, and Reports related to Women’s Health – On the FDA website, it has important developments in US health regulations of people assigned female at birth since the 1960s to present day, including reports you can view.
- Sex matters: Drugs can affect sexes differently – CBS 60 minutes news report.
- How we fail black patients in pain – Article from the Association of American Medical Colleges.
- Racial bias in pain assessment and treatment recommendations, and false beliefs about biological differences between blacks and whites – “Racial bias in pain assessment.” Kelly M. Hoffman, Sophie Trawalter, Jordan R. Axt, M. Norman Oliver. Proceedings of the National Academy of Sciences Apr 2016, 113 (16) 4296-4301; DOI: 10.1073/pnas.1516047113
- 10 Stats You Need to Know About LGBT Healthcare
- Sabin JA, Riskind RG, Nosek BA. Health Care Providers’ Implicit and Explicit Attitudes Toward Lesbian Women and Gay Men. Am J Public Health. 2015;105(9):1831-1841. doi:10.2105/AJPH.2015.302631
Ep 45 – Racial Bias in Healthcare
Sources:
- Just Medicine: A Cure for Racial Inequality in American Health Care Book by Dayna Matthews
- So You Want to Talk About Race Book by Ijeoma Oluo.
- How We Fail Black Patients in Pain.
- Research explores racial bias in medical care across nations.
- Racism, Inequality, and Health Care for African Americans
- Racial/Ethnic Disparities in Pregnancy-Related Deaths — United States, 2007–2016
- US Department of Health and Human Services. Profile: Black/African American
- Racial Bias Found in a Major Health Care Risk Algorithm
- FitzGerald, C., Hurst, S. Implicit bias in healthcare professionals: a systematic review. BMC Med Ethics 18, 19 (2017). https://doi.org/10.1186/s12910-017-0179-8
Resources:
- Not Defined by Endo – A podcast on endometriosis in which Teniola Ongunro (who co-hosts this episode on racial bias with me) interviews endometriosis specialists and advocates. Topics have included infertility, painful sex, pelvic pain, PCOS, nutrition, and more. Not all the episodes are currently on her website, so definitely check it out in your favorite podcast app!
- ENDO Black – “ENDO Black, Inc. has a mission of advocating for African American women and women of color affected by endometriosis. We are here to connect you with women who look just like you and who battle with endometriosis just like you. ENDO Black is a safe space for women, to ask questions, to be encouraged, and to receive advice on how to manage the disorder.” They have information, videos, ambassadors, blog posts, events, and more! Also on Instagram.
- Myths and Misconceptions Perpetuating Racism in Endometriosis, Infertility, and Pelvic Pain. – Fantastic article which features several African American advocates and their experiences and advice on navigating endo. The article has links to all of their platforms on social media, so you can follow them, as well as links to the two videos of the in depth discussions they had together on these topics, the content from which the article is based upon.
- Black Man in a White Coat Book by Damon Tweedy
- Ted Talks: The Link Between Health and Racism – There are several videos here on racism and health care.
Ep 46 – Why Science Knows Less About the Bodies of People Assigned Female at Birth
- Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick by Maya Dusenbery.
- Regulations, Guidance, and Reports related to Women’s Health – FDA landing page which has a timeline and links to the different reports we mentioned.
- Women’s Health Research: Progress, Pitfalls, and Promise (2010) – Report from the Committee on Women’s Health Research and Institute of Medicine.
- The breast/uterine cancer study with no women invited
- How Long Does Lupron or Its Metabolites Circulate? No One Really Knows – Article by Lynn Millican on the website Hormones Matter.
- How the FDA let women down – Article on Drugwatch.
- 2015 – 2016 Global Participation in Clinical Trials Report – This link will download the PDF report from the FDA.
- Racial and Ethnic Minorities in Clinical Trials – FDA landing page which has links and resources.
Ep 47 – The Limitations of the Endometriosis Staging System
- Video: The Stages of Endometriosis explained by Dr. Cook – Dr. Cook is an excision surgeon at Vital Health Endometriosis. You can also see the rASRM staging system here.
- Extrapelvic Not Rare – a non-profit organization run by Wendy Bingham. Well-researched facts and informative videos on the body systems it affects and statistics.
- Stages of Endometriosis – Article on endometriosis.net.
- The rASRM score and the Enzian classification for endometriosis: their strengths and weaknesses. Dietmar Haas, Omar Shebl, Andreas Shamiyeh, Peter Oppelt. First published: 13 October 2012. https://doi.org/10.1111/aogs.12026.
- How to improve the current ASRM classification of endometriosis?
- MR Imaging in Deep Pelvic Endometriosis: A Pictorial Essay – Antônio Coutinho, Jr, Leonardo Kayat Bittencourt , Cíntia E. Pires, Flávia Junqueira, Cláudio Márcio Amaral de Oliveira Lima, Elisa Coutinho, Marisa A. Domingues, Romeu C. Domingues, Edson Marchiori. Published Online:Mar 7 2011. https://doi.org/10.1148/rg.312105144
Ep 48 – Why is Pain Dismissed in People Assigned Female at Birth?
- Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick by Maya Dusenbery
- Medical Bondage: Race, Gender, and the Origins of American Gynecology by Deirdre Cooper Owens
- For Her Own Good: Two Centuries of the Experts Advice to Women by Barbara Ehrenreich
- The Makings of a Modern Epidemic: Endometriosis, Gender and Politics by Kate Seear
- Lecture Notes: Freud, “Aetiology of Hysteria” (1896) – Lecture notes from University of Washington Professor Richard T. Gray (Winter Quarter, 2016)
- Briggs, Laura. “The Race of Hysteria: ‘Overcivilization’ and the ‘Savage’ Woman in Late Nineteenth-Century Obstetrics and Gynecology.” American Quarterly, vol. 52, no. 2, 2000, pp. 246–273. JSTOR, www.jstor.org/stable/30041838. Accessed 14 Oct. 2020.
- Anke Samulowitz, Ida Gremyr, Erik Eriksson, Gunnel Hensing, ““Brave Men” and “Emotional Women”: A Theory-Guided Literature Review on Gender Bias in Health Care and Gendered Norms towards Patients with Chronic Pain”, Pain Research and Management, vol. 2018, Article ID 6358624, 14 pages, 2018. https://doi.org/10.1155/2018/6358624
Ep 50 – But Doctor, It’s Not Psychosomatic!
- Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick by Maya Dusenbery
- Anke Samulowitz, Ida Gremyr, Erik Eriksson, Gunnel Hensing, ““Brave Men” and “Emotional Women”: A Theory-Guided Literature Review on Gender Bias in Health Care and Gendered Norms towards Patients with Chronic Pain”, Pain Research and Management, vol. 2018, Article ID 6358624, 14 pages, 2018. https://doi.org/10.1155/2018/6358624
- Bias In Medicine: Last Week Tonight with John Oliver (HBO) – Youtube video with U.S. comedian John Oliver.
- Bransfield RC, Friedman KJ. Differentiating Psychosomatic, Somatopsychic, Multisystem Illnesses, and Medical Uncertainty. Healthcare (Basel). 2019;7(4):114. Published 2019 Oct 8. doi:10.3390/healthcare7040114
Ep 52 – How Sleep Affects Our Health and Pain Levels
- Why We Sleep: Unlocking the Power of Sleep and Dreams by Matthew Walker PHD
- Why We Need Sleep, with Dr. Matthew Walker – Podcast interview with Dr. Chris Kresser
- Baumgartner A, Dietzel M, Saletu B, Wolf R, Campos-Barros A, Gräf KJ, Kürten I, Mannsmann U. Influence of partial sleep deprivation on the secretion of thyrotropin, thyroid hormones, growth hormone, prolactin, luteinizing hormone, follicle stimulating hormone, and estradiol in healthy young women. Psychiatry Res. 1993 Aug;48(2):153-78. doi: 10.1016/0165-1781(93)90039-j. PMID: 8416024.
- Waters F, Chiu V, Atkinson A, Blom JD. Severe Sleep Deprivation Causes Hallucinations and a Gradual Progression Toward Psychosis With Increasing Time Awake. Front Psychiatry. 2018;9:303. Published 2018 Jul 10. doi:10.3389/fpsyt.2018.00303
- Insomnia Until it Hurts. The role of sleep deprivation in chronic pain, especially muscle pain
- Bennett RM, Jones J, Turk DC, Russell IJ, Matallana L. An internet survey of 2,596 people with fibromyalgia. BMC Musculoskelet Disord. 2007;8:27. Published 2007 Mar 9. doi:10.1186/1471-2474-8-27
- Here’s Why You Shouldn’t Take a Sleeping Pill Every Night
- Half-And-Half Mix of Placebos And Sleeping Pills May Be Best For Insomnia, Study Finds
- Cognitive Behavioral Therapy for Insomnia (CBT-I)
- Qaseem A, Kansagara D, Forciea MA, Cooke M, Denberg TD; Clinical Guidelines Committee of the American College of Physicians. Management of Chronic Insomnia Disorder in Adults: A Clinical Practice Guideline From the American College of Physicians. Ann Intern Med. 2016 Jul 19;165(2):125-33. doi: 10.7326/M15-2175. Epub 2016 May 3. PMID: 27136449.
Ep 55 – Endometriosis and Estrogen
- Bulun SE, Monsavais D, Pavone ME, et al. Role of estrogen receptor-β in endometriosis. Semin Reprod Med. 2012;30(1):39-45. doi:10.1055/s-0031-1299596
- Serdar E Bulun, Bahar D Yilmaz, Christia Sison, Kaoru Miyazaki, Lia Bernardi, Shimeng Liu, Amanda Kohlmeier, Ping Yin, Magdy Milad, JianJun Wei, Endometriosis, Endocrine Reviews, Volume 40, Issue 4, August 2019, Pages 1048–1079, https://doi.org/10.1210/er.2018-00242
- Endometriosis in Males – By Wendy Bingham from ExtraPelvic Not Rare
- Helpful table about hormonal balance symptoms – A list of the functions of estrogen in the body and symptoms of high or low estrogen
- Endometriosis persisting after hysterectomy and bilateral salpingo-oophorectomy: Removing the disease, not organs, is key to long-term relief – Article from Endopaedia.info
- Reason Why Hormone Therapy Alone Cannot Cure Endometriosis Uncovered – Quick summary of a research article on hormone receptors
Ep 56 – Endometriosis is NOT the Endometrium. Part 1
- Bulun SE, Yilmaz BD, Sison C, et al. Endometriosis. Endocr Rev. 2019;40(4):1048-1079. doi:10.1210/er.2018-00242
- Aude Béliard, M.D., Ph.D., Agnès Noël, Ph.D., Jean-Michel Foidart, M.D., Ph.D. Reduction of apoptosis and proliferation in endometriosis. Jul 1, 2004. DOI:https://doi.org/10.1016/j.fertnstert.2003.11.048
- Ali-Akbar Delbandi, M.Sc., Mahmoud Mahmoudi, Ph.D., Adel Shervin, M.D., Mojtaba Sankian, Ph.D., Somayeh Kazemnejad, Ph.D., Amir-Hassan Zarnani, Ph.D. Eutopic and ectopic stromal cells from patients with endometriosis exhibit differential invasive, adhesive, and proliferative behavior. May 29, 2013. DOI:https://doi.org/10.1016/j.fertnstert.2013.04.041
- Howard M Gebel, Ph.D., Donald P Braun, Ph.D., Anat Tambur, D.M.D., Ph.D., David Frame, Ph.D., Nasir Rana, M.D., W.Paul Dmowski, M.D., Ph.D. Spontaneous Apoptosis of Endometrial Tissue is Impaired in Women with Endometriosis. Jun 1, 1998. DOI:https://doi.org/10.1016/S0015-0282(98)00073-9
- Hilary O. D. Critchley, Jacqueline A. Maybin, Gregory M. Armstrong, and Alistair R. W. Williams. Physiology of the Endometrium and Regulation of Menstruation. 29 Apr 2020 DOI:https://doi.org/10.1152/physrev.00031.2019
- The Standard of Care is not Sufficient – Article on Nancy’s Nook by Dr. Jeff Arrington
- Endometriosis FAQs – These are from ACOG’s website, and as we mention in the episode, they have the definition of endo incorrect as well as misleading information on treatment
- Petitioning ACOG to Change the Standards of Care for Endometriosis Patients – Information on the petition to ACOG
- The Problem with the ACOG Website – From Casey Berna’s website, this is a rewritten version of ACOG’s FAQs with correct information
- Q&A with Dr. Redwine: Is Endometriosis Genetic? If so, why won’t it always recur post-operatively?
- Nosebleeds – Article by Wendy Bingham from ExtraPelvic Not Rare
Ep 57 – Endometriosis is NOT the Endometrium. Part 2
- Is endometriosis an autotransplant? – From Endopaedia.info. You can see a chart of differences between endo and the endometrium.
- Marquardt RM, Kim TH, Shin JH, Jeong JW. Progesterone and Estrogen Signaling in the Endometrium: What Goes Wrong in Endometriosis? Int J Mol Sci. 2019;20(15):3822. Published 2019 Aug 5. doi:10.3390/ijms20153822 – There is also a chart of differences of endo and the endometrium here.
- Bulun SE, Yilmaz BD, Sison C, et al. Endometriosis. Endocr Rev. 2019;40(4):1048-1079. doi:10.1210/er.2018-00242
- David Redwine, MD – Dr. Redwine’s talk on HOX genes.
- Bulun SE, Monsavais D, Pavone ME, et al. Role of estrogen receptor-β in endometriosis. Semin Reprod Med. 2012;30(1):39-45. doi:10.1055/s-0031-1299596
- Progesterone Resistance in Endometriosis – Article on Nancy’s Nook.
- Bulun SE, Cheng YH, Pavone ME, et al. 17Beta-hydroxysteroid dehydrogenase-2 deficiency and progesterone resistance in endometriosis. Semin Reprod Med. 2010;28(1):44-50. doi:10.1055/s-0029-1242992
Ep 58 – Endometriosis Interview with Heather Guidone, BCPA, CEC Program Director
- The Palgrave Handbook of Critical Menstruation Studies – “Multi-disciplinary, genre-spanning and critical examination of the cultural, psychological, political and social aspects of menstruation.” Editors: Chris Bobel, Inga T. Winkler, Breanne Fahs, Katie Ann Hasson, Elizabeth Arveda Kissling, Tomi-Ann Roberts.
- Center for Endometriosis Care – “Led by internationally renowned endometriosis expert Ken Sinervo, MD, MSc, FRCSC, ACGE, the CEC is a global leader in the care and treatment of the disease. As one of the first dedicated centers of expertise in endometriosis in the world, founded thirty years ago by Dr Robert B. Albee, Jr., we have provided compassionate care to thousands of patients from more than sixty countries. We are also staunch disease advocates and educators. The CEC is a pioneer in Laparoscopic Excision (LAPEX) – the surgical cornerstone of a multidisciplinary approach to effective disease management. Dr Sinervo & Dr Arrington specialize in all forms of endometriosis, including extrapelvic and deep/complex disease.
Ep 59 – Endometriosis Interview (Part 1) with Wendy Bingham DPT, Founder of ExtraPelvic Not Rare
- ExtraPelvic Not Rare – Website. Here you can find the links to all the information Wendy has amassed, plus educational videos on extrapelvic endo and her blog.
- Extrapelvic Not Rare Endo Support and Education Group – Facebook Group
- @extrapelvicnotrare – Instagram handle
Ep 60 – Endometriosis Interview (Part 2) with Wendy Bingham DPT, Founder of ExtraPelvic Not Rare
- Beyond Primates, Rabbits and Mice – Info on endo in animals
- Blog #6: What does endometriosis have to do with the #1 killer of women? – Scroll down to blog #6
- ExtraPelvic Not Rare – Website. Here you can find the links to all the information Wendy has amassed, plus educational videos on extrapelvic endo and her blog.
- Extrapelvic Not Rare Endo Support and Education Group – Facebook Group
- @extrapelvicnotrare – Instagram handle