Feel supported, get inspired, be understood

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Laugh, cry, and shout with us as we talk all things endometriosis.

I’m Amy (she/her), and I started the podcast In Sixteen Years of Endometriosis to talk about different facets of endometriosis. While I do some interviews with excision surgeons and endometriosis advocates, in most episodes it’s me and my witty best friend Brittany (she/they) talking about a broad range of topics.

Brittany and I pride ourselves on sharing accurate, well-researched information, which is necessary for this disease where misinformation is the norm, even from many well-intentioned doctors themselves! We share disease facts with a side of humor, personify endometriosis, and also delve into all those embarrassing did-that-really-just-happen?! stories. (And yes, they definitely did happen…)

*If you come across any misinformation on my podcast or website, please reach out to me so I can look into it and correct it.

Wherever you are in your own health journey, Brittany and I hope our podcast will help you feel more supported and empowered. If you take away anything from our podcast, we want you to know that you are not alone! There is a whole community of people out there who share similar experiences, even though illness and pain can feel incredibly isolating at times.

On our podcast, you’ll find:

Practical tips

Want more energy? Want to commit to new habits or communicate better about your illness with loved ones?

Facts around the disease

What are the types of endometriosis? The stages? Why does it cause fatigue and pain? What causes endometriosis? Where can it be in the body? What myths and misconceptions are prevalent around endometriosis?

You will also find accurate information about endometriosis on my website!

Common treatment and management options

Why is excision the gold standard? How do we find an endometriosis specialist? What does research say on Lupron, Orilissa, and birth control? What role can diet and lifestyle play?

Resiliency

It astounds me how much we go through. Do you know how strong you are to live with this awful disease?

Acceptance

Sometimes there are moments that are absolutely unbearable. We talk candidly about the anger, shame, sadness, and other feelings endometriosis can bring, and how to get through them to find peace, gratitude, and joy.

Important note on being inclusive

Endometriosis affects people of all genders and sexes, including cis-women, nonbinary people, trans people, gender non-conforming people, intersex people, and cis-men. Unfortunately, when we began our podcast, we were not yet aware of this, and in a few of our earliest episodes (mainly episodes 7, 15, and 16), we referred to women with endometriosis. Once we learned that endometriosis is not a woman’s disease, we changed to inclusive language and have been actively working to educate ourselves further on this.

To highlight more voices and experiences within our endometriosis community, and to spread awareness that endometriosis can affect people of all genders and sexes, we interviewed 2 non-binary people with endometriosis on the importance of inclusivity, in episode 64 and 72, and plan to do further interviews with gender-diverse people.

Please know that we welcome all people of all gender identities and expressions here. Including all people with endometriosis in conversations about the disease is vital because it’s important to have a safe and inclusive space when talking about endometriosis, which can help people feel seen as well as access medical care.

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Ep94: The Medical vs Social Model of Disability. Part 2

We talk about the medical and the social model of disability, and our thoughts on how it applies to endometriosis and chronic illness in general. These 2 models, which...

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Ep93: The Medical vs Social Model of Disability. Part 1

Like all things in life, there are many perspectives and ways of looking at disability and the social, political, cultural, and economic factors that define it. Two of the...

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Ep92: Hormonal Medication Options for Endometriosis

In episode 91, we talked at length about how no hormonal medications actually treat the disease, in spite of this prevalent misinformation among the medical community. Excision is the...

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Ep91: What Can Hormonal Suppression Actually Do For Endometriosis?

Hormonal suppression – such as combined hormonal contraception, IUDs, progestins like Dienogest/Visanne, or GNRH analogs like Lupron, Orilissa, Zoladex , Synarel, Prostap, etc – MAY help SOME people with...

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Ep90: Pelvic Floor Physical Therapy with Dr. Amy Stein

We welcome Dr. Amy Stein, a physical therapist at the forefront of treating pelvic floor dysfunction and pelvic pain. In addition to being the founder of Beyond Basics Physical...

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Ep89: Endometriosis and Disability

We break down the definition of disability under the ADA or the Americans with Disabilities Act, as well as mention the WHO criteria. We also discuss dynamic as well...

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