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Laugh, cry, and shout with us as we talk all things endometriosis.
I’m Amy (she/her), and I started the podcast In Sixteen Years of Endometriosis to talk about different facets of endometriosis.
Our podcast has 2 types of episodes:
- Chats between Amy and Brittany, 2 best friends that pride ourselves on sharing accurate, well-researched information in a fun, digestible way. Hang out with us while we delve into embarrassing did-that-really-just-happen?! endometriosis stories and talk vulnerably about our personal growth. Some of our favorite episodes are the later ones – we really love how our knowledge, and also we, have grown over time!
- Amy leads amazing interviews with renowned excision surgeons, subject experts, and endo advocates worldwide!
My podcast is a platform for different voices and viewpoints, but each person’s opinions are their own. Their appearance on my podcast doesn’t mean I’m endorsing them or their viewpoints. And remember, even when guests are doctors, nothing on this podcast constitutes medical advice!
Wherever you are in your own health journey, Brittany and I hope our podcast will help you feel more supported and empowered. If you take away anything from our podcast, we want you to know that you are not alone! There is a whole community of people out there who share similar experiences, even though illness and pain can feel incredibly isolating at times. One of the most common compliments we receive about our show is “I feel like someone finally understands me” or “Listening to you feels like I’m hanging out with friends that support me”.
On our podcast, you’ll find:
Disease facts
What are the types of endometriosis? The stages? Why does it cause fatigue and pain? What causes endometriosis? Where can it be in the body? What myths and misconceptions are prevalent around endometriosis?
You will also find accurate information about endometriosis on this website!
Common treatment and management options
Why is excision the gold standard? How do we find an endometriosis specialist? What does research say on Lupron, Orilissa, and birth control? What role can diet and lifestyle play?
Mental health discussions
Living with endometriosis is taxing on us emotionally. The pain and symptoms can be unbearable at times, and finding healthy coping mechanisms is vital. We talk candidly about the anger, shame, sadness, and other feelings endometriosis can bring, and how to get through them to find peace, gratitude, and joy.
Practical tips
Want more energy? Want to commit to new habits or communicate better about your illness with loved ones?
*If you come across any misinformation on my podcast or website, please reach out to me so I can look into it and correct it.
Important note on being inclusive
Endometriosis affects people of all genders and sexes, including cis-women, nonbinary people, trans people, gender non-conforming people, intersex people, and cis-men. Unfortunately, when we began our podcast, we were not yet aware of this, and in a few of our earliest episodes, we referred to women with endometriosis. (Mainly episodes 7, 15, and 16 – these episodes now have a content warning on them for gendered language.) Once we learned that endometriosis is not a woman’s disease, we changed to inclusive language and have been actively working to educate ourselves further on this.
To highlight more voices and experiences within our endometriosis community, and to spread awareness that endometriosis can affect people of all genders and sexes, we interviewed 2 non-binary people with endometriosis on the importance of inclusivity, in episode 64 and 72, and plan to do further interviews with gender-diverse people.
Please know that we welcome all people of all gender identities and expressions here. Including all people with endometriosis in conversations about the disease is vital because it’s important to have a safe and inclusive space when talking about endometriosis, which can help people feel seen as well as access medical care.
- All
- Culture
- Disease Facts
- Food
- Life with Endo
- Medical Care
- Mentality
- Other
- Pain
111: The Grief of Chronic Illness
We talk about the grief that can accompany having a chronic illness. When endometriosis causes us ongoing losses in multiple aspects of our life, over and over again, it’s...
Podcast: Play in new window | Download (Duration: 1:15:10 — 51.6MB)
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110: Interview: Endo Standard of Care with Arti Shah of Kenya
We speak with Arti Shah (she/her), a content creator and a dedicated endometriosis advocate actively engaged in the endometriosis space in Kenya and beyond. Her conviction and commitment is...
Podcast: Play in new window | Download (Duration: 47:56 — 32.9MB)
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109: Surgeon Interview: Adhesions with Excision Surgeon Dr. Dulemba
We interview Dr Dulemba, an excision surgeon who has been in private practice in Denton, Texas, since 1986. He’s performed over 7300 endometriosis surgeries, so he has a lot...
Podcast: Play in new window | Download (Duration: 1:14:08 — 50.9MB)
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Ep108: Advocacy Mistakes We’ve Made and Tips for Endo Advocacy
We’ve had this podcast for over 4 years! Recently, I listened to our episodes 1-50 to update them where necessary, and I saw how much our advocacy has changed...
Podcast: Play in new window | Download (Duration: 1:14:07 — 50.9MB)
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Ep107: Interview: How to Find an Excision Surgeon with Kate Boyce, BCPA
We speak with Kate Boyce (she/her), who is the co-founder of the Instagram and webpage EndoGirlsBlog, which provides accurate information to people with endometriosis. Kate is a board certified...
Podcast: Play in new window | Download (Duration: 1:13:27 — 50.4MB)
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Ep106: Surgeon Interview: Robotic Surgery for Endo with Excision Surgeon Dr. Dulemba
We interview Dr Dulemba, an excision surgeon who has been in private practice in Denton, Texas, since 1986. He’s performed over 5000 standard laparoscopic endometriosis cases and over 2300...
Podcast: Play in new window | Download (Duration: 1:16:32 — 52.6MB)
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