As a part of Endometriosis Awareness Month, we speak with Wendy Bingham DPT, the founder of the non-profit called ExtraPelvic Not Rare, which is dedicated to starting conversation about extrapelvic endometriosis, while providing correct, up-to-date information about the signs and symptoms, diagnostics and appropriate treatment referrals. In this episode, we speak about why the definition of endometriosis desperately needs an overhaul and the proposed definitions from the scientific community for it. Likewise, we speak about the problems with the current definition of extrapelvic endo. We discuss the ICD (International Classification of Diseases) codes and why these negatively affect our ability to truly know the statistics of extrapelvic endo. Finally, we talk about various theories to the origin of endo, and why it’s vital that the medical community understand that extrapelvic disease is much more common than they believe.

WENDY’S WEBSITE: extrapelvicnotrare.org

WENDY’S INSTAGRAM: @extrapelvicnotrare

WENDY’S FB GROUP: ExtraPelvic Not Rare Endo Support and Education Group

CONNECT WITH US! INSTAGRAM: @in16yearsofendo

WEBSITE AND RESOURCES: insixteenyears.com

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