Ep103: Interview: Change the Guidelines with Invisible Iconic of Australia

We speak with Alexandra (Alex) Mitchell (she/her) from Australia about the standard of endometriosis care, discussing the Australian movement to Change the Guidelines as well as problems with multiple guidelines worldwide. Alex is an outspoken advocate in our endometriosis community. Across multiple social media platforms and organizations, she pushes for systemic changes to endometriosis care…

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Ep102: Surgeon Interview: The Importance of Informed Consent with Dr. Jeff Arrington

Dr. Jeff Arrington is an outspoken endometriosis advocate, expert endometriosis excision surgeon, and advanced Minimally Invasive Gynecologic Surgery specialist. The evolution of his practice to focus on advanced excision of endometriosis really was driven by patient need. In practice he was able to continue advancing knowledge and surgical skill through focusing on endometriosis care, eventually…

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Ep101: You Are Not Broken

With dealing with this disease and all the repercussions of it on our physical and mental health, many of us feel or have felt like we are broken. We explore the feelings of brokenness and talk about how although we might feel like we are broken – which are valid feelings and a normal response…

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Ep100: Surgeon Interview: Excision Surgery with Dr. Abhishek Mangeshikar

Dr. Abhishek Mangeshikar (he/him) is an expert excision surgeon who also advocates and spreads awareness of correct information of endometriosis. He’s performed almost 2000 surgeries, and has been running his multidisciplinary endometriosis practice for over 7 years. He is the founder and director of the Indian Centre for Endometriosis (ICE), which is a knowledge bank…

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Ep99: Interview: Endo Standard of Care with Olivia Nwankudu of Nigeria

Olivia Nwankudu (she/her) is an endometriosis advocate and Founder of EndoSurvivors International Foundation (ESIF); a non-profit organization focused on raising awareness about endometriosis, educating the public about endometriosis, and supporting endometriosis patients in Nigeria. ESIF is also committed to reducing period poverty and improving school retention through the free distribution of sanitary pads to school…

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Ep98: Identifying as Disabled

Updated 10/2023. We continue our series on disability by talking about identifying as disabled with endometriosis, internalized ableism, invisible or non-apparent disability, the social vs the medical model of disability, and language around disability. CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SUPPORT US…

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Ep97: Interview: Endo Standard of Care with Soha Wahb of Lebanon

Soha Wahb (she/her) is a Lebanese medical student at the American University of Beirut, and founder of “Endo In Arabic”, an initiative that aims to provide accurate information about Endometriosis in both English and Arabic, and to shed light on patients’ struggles and the factors hindering access to proper care. In this episode, Soha brings…

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Ep96: The Psychological Toll of Medical Gaslighting

Updated 10/2023. We talk about some common examples of medical gaslighting that we may have heard from our doctors, and delve into the psychological toll it can take on us. CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SUPPORT US by buying us a…

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Ep95: Interview: Endometriosis Guidelines with Kate Boyce

There are various endometriosis guidelines worldwide which guide gynecologists in treating endometriosis and set the standard of care. Amy speaks with Kate Boyce (she/her), who is the co-founder of the Instagram and webpage EndoGirlsBlog, which provides accurate information to people with endometriosis. Kate is a board certified patient advocate and endometriosis patient herself. We talk…

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Ep94: The Medical vs Social Model of Disability. Part 2

Updated 10/2023. We talk about the medical and the social model of disability, and our thoughts on how it applies to endometriosis and chronic illness in general. These 2 models, which we explained about in episode 93, are just 2 ways of many to look at disability. CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES:…

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