Amy and Brittany wrap up our discussion about advocating for ourselves, sharing 4 stories about times in our lives when we originally didn’t advocate for ourselves, but then through preparation, self-work, and better understanding disability and ourselves, we successfully advocated for what we needed! These stories include 2 personal ones (with our family and traveling)…
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Amy and Brittany talk about how beliefs about our worth and what we deserve can often get in the way of asking for what we want, especially with our chronic illness and disability. Because of socialization in society for women and those AFAB, ableist comments from loved ones, and the times people made us feel…
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Amy speaks with Casey Berna about her new book “Endometriosis: From Harm to Hope”. We talk about topics discussed in her book, such as: —medical narcissism and how to navigate difficult experiences with our healthcare professionals —what the medical industry complex is and how it harms patients —the importance of identifying our needs, how to…
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Amy speaks with Judith Chavarría about: —what her personal experience with endometriosis is —what’s helped her physically and emotionally to live better with this disease —her advice for others living with endo 🎤WHO IS JUDITH CHAVARRÍA?🎤 Judith is 38 years old and lives in Matagalpa, Nicaragua. She has been married for 6 years and has…
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Amy speaks with Sharida Mohammed about: —how medical gaslighting caused her to doubt and invalidate her pain —how upsetting it is that treatment options are so limited and inaccessible for people with endo —her advice to others living with endometriosis 🎤WHO IS SHARIDA MOHAMMED?🎤 Sharida Mohammed is a graphic designer from the twin islands of…
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Amy and Brittany talk about what it’s like to live with chronic diarrhea: —the social embarrassment it can cause —the close calls we’ve had in public, including times we just didn’t make it to the toilet! —the unhealthy coping mechanisms we had ☀️CONNECT WITH AMY☀️ Instagram @in16yearsofendo Website: www.insixteenyears.com Like my show? Please rate it…
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Amy speaks with Stephanie Moss, MD about: —the importance of trauma-informed medical care —how being an endometriosis patient has informed her perspective as a new doctor —navigating disability accommodations and her insights on this as a medical student 🎤WHO IS DR. STEPHANIE MOSS?🎤 Stephanie Moss, MD, is an endometriosis warrior and a PGY-2 Psychiatry Chief…
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Amy speaks with Rey about various topics. We talk about: —the independent research project they spearheaded which is focused on illustrating how improving practitioner education will result in positive patient outcomes. —why they made the decision to leave their country to seek expert treatment elsewhere. —their experience with MHT/HRT. 🎤WHO IS REY?🎤 Rey (they/she) is…
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Today Amy and Brittany talk about working with endometriosis: —the mental battle to decide when you’re “sick enough” to call out and take the day off —the pressure we might feel to hide how we are really feeling —how draining it can be to work with chronic illness and how much it can take out…
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Amy speaks with Lula Cuba about: —how impossible it can be to find trustworthy endo information for non-English speakers —her experience as an adolescent with endo growing up in difficult housing conditions —the importance of checking your medical charts for mistakes, misdiagnoses, and harmful comments. 🎤WHO IS LULA CUBA?🎤 Lula Cuba is 33 years old…
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