Culture

112: Interview: Why Representation Matters within the Endo Community, with Julia Mandeville of Barbados

Today we are so excited to speak with Julia Mandeville. Julia is the co-founder of the Barbados Association of Endometriosis & P.C.O.S. She is currently a doctoral student and as part of her role as a graduate researcher, she is the project coordinator of several research studies investigating barriers to diagnosis for Black people with…

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110: Interview: Endo Standard of Care with Arti Shah of Kenya

We speak with Arti Shah (she/her), a content creator and a dedicated endometriosis advocate actively engaged in the endometriosis space in Kenya and beyond. Her conviction and commitment is to positively impact the narrative of living with endometriosis through self-advocacy, play therapy and personal engagement. Arti advocates so that the next generation doesn’t have to…

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Ep97: Interview: Endo Standard of Care with Soha Wahb of Lebanon

Soha Wahb (she/her) is a Lebanese medical student at the American University of Beirut, and founder of “Endo In Arabic”, an initiative that aims to provide accurate information about Endometriosis in both English and Arabic, and to shed light on patients’ struggles and the factors hindering access to proper care. In this episode, Soha brings…

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Ep64: Interview: Talking about Gender and Inclusivity with Lori Johansson

While endometriosis primarily affects people assigned female at birth (AFAB), not everyone who has endometriosis and is AFAB identifies as a woman. We speak with Lori Johansson about gender, gender identity, and ways to be more inclusive in our endometriosis advocacy. Lori is a nonbinary endo advocate with both endo and adeno, and as part…

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Ep50: Medicine’s Sex and Gender Bias. Part 4

Updated 4/2023. Part 4 – But Doctor, It’s Not Psychosomatic! This is the final episode in our 4 part series on medicine’s sex and gender bias, in which we continue to focus on how this bias affects the care of people assigned female at birth. Today, we wrap up everything we spoke about in the…

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Ep48: Medicine’s Sex and Gender Bias. Part 3

Updated 4/2023. Part 3 – Why Is Pain Dismissed in People Assigned Female at Birth? In this episode, we explore the “gender” side of the sex and gender bias in medicine. We look at assumptions and stereotypes specifically related to people assigned female at birth and illness as held by the overall medical community. We…

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Ep46: Medicine’s Sex and Gender Bias. Part 2

Updated 4/2023. Why Science Knows Less About the Bodies of People Assigned Female at Birth. We talk about the ‘sex bias’ and why science knows less about the bodies of people assigned female at birth. This means that less is known about disease presentations and side effects for medications for people with these bodies, as…

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Ep45: Interview: Racial Bias in Healthcare with Teniola Ongunro

Today, we collaborate with Teniola Ongunro, who hosts the excellent podcast ‘Not Defined By Endo’, to speak about racial bias in healthcare. Racial bias can be one of the most detrimental and undercutting barriers for BIPOC in getting proper diagnosis of their health problems and high quality treatment. We talk about what the racial bias…

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Ep44: Medicine’s Sex and Gender Bias – Part 1

Updated 4/2023. Part 1 – It’s Not in Your Head. Ever wonder why so many doctors dismiss the pain of people assigned female at birth or make us feel like (or outright tell us!) that our symptoms are all “in our heads”? This is part 1 of 4 in our series on the Sex and…

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Ep7: Period Shame, Endoflares, and Social Stigma

Updated 4/2023. Amy shares about a time when her period came and she had a mortifying endoflare at work, which makes us wonder why we often feel shame in relation to our periods, our endo, and reproductive organs? We explore societal, cultural, and historical reasons, and how we can try to destigmatize menstruation. Note: Endometriosis…

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