Laugh, cry, and shout with us as we talk all things endometriosis.
I’m Amy (she/her), and I started the podcast In Sixteen Years of Endometriosis to talk about different facets of endometriosis.
Our podcast has 2 types of episodes:
- Chats between Amy and Brittany, 2 best friends that pride ourselves on sharing accurate, well-researched information in a fun, digestible way. Hang out with us while we delve into embarrassing did-that-really-just-happen?! endometriosis stories and talk vulnerably about our personal growth. Some of our favorite episodes are the later ones – we really love how our knowledge, and also we, have grown over time!
- Amy leads amazing interviews with renowned excision surgeons, subject experts, and endo advocates worldwide!
My podcast is a platform for different voices and viewpoints, but each person’s opinions are their own. Their appearance on my podcast doesn’t mean I’m endorsing them or their viewpoints. And remember, even when guests are doctors, nothing on this podcast constitutes medical advice! See my full disclaimer here.
Wherever you are in your own health journey, Brittany and I hope our podcast will help you feel more supported and empowered. If you take away anything from our podcast, we want you to know that you are not alone! There is a whole community of people out there who share similar experiences, even though illness and pain can feel incredibly isolating at times. One of the most common compliments we receive about our show is “I feel like someone finally understands me” or “Listening to you feels like I’m hanging out with friends that support me”.
On our podcast, you’ll find:
What are the types of endometriosis? The stages? Why does it cause fatigue and pain? What causes endometriosis? Where can it be in the body? What myths and misconceptions are prevalent around endometriosis?
You will also find accurate information about endometriosis on this website!
Common treatment and management options
Why is excision the gold standard? How do we find an endometriosis specialist? What does research say on Lupron, Orilissa, and birth control? What role can diet and lifestyle play?
Mental health discussions
Living with endometriosis is taxing on us emotionally. The pain and symptoms can be unbearable at times, and finding healthy coping mechanisms is vital. We talk candidly about the anger, shame, sadness, and other feelings endometriosis can bring, and how to get through them to find peace, gratitude, and joy.
Want more energy? Want to commit to new habits or communicate better about your illness with loved ones?
*If you come across any misinformation on my podcast or website, please reach out to me so I can look into it and correct it.
Important note on being inclusive
Endometriosis affects people of all genders and sexes, including cis-women, nonbinary people, trans people, gender non-conforming people, intersex people, and cis-men. Unfortunately, when we began our podcast, we were not yet aware of this, and in a few of our earliest episodes, we referred to women with endometriosis. (Mainly episodes 7, 15, and 16 – these episodes now have a content warning on them for gendered language.) Once we learned that endometriosis is not a woman’s disease, we changed to inclusive language and have been actively working to educate ourselves further on this.
Please know that we welcome all people of all gender identities and expressions here. Including all people with endometriosis in conversations about the disease is vital because it’s important to have a safe and inclusive space when talking about endometriosis, which can help people feel seen as well as access medical care.
The intro/outro music is Heavenless – Epic Inspirational Adventure. Provided by Jamendo.
Meet the podcast hosts!
Content Creator and Show Host
Hi! I’m Amy. I love doing art, walking my cats outside, and camping. I have endometriosis, fibromyalgia, interstitial cystitis, SIBO, and mast cell activation syndrome.
I can’t believe where I’m at today, especially compared to where I started.
In 2002, I began having diarrhea 25x a day, chronic pelvic pain, relentless leg pain that NEVER EVER stopped. A decade lost to pain; dreams put on hold/given up; feelings of isolation, desperation, despair.
I remember years of mouth ulcers, swollen lymph nodes, rashes from lying down all day, eyes closing from fatigue mid-conversation, nausea, passing out, wanting to crawl out of my own skin.
I had shingles, 9 kidney stones, a ruptured eardrum after vomiting violently during my period. I’ve collapsed on sidewalks in pain; pooed, peed, or vomited on myself in public. 3 surgeries, 2 cancer scares, 6 diagnoses.
For 20 years, I’ve been sick, but I’ve also been working on healing, both physically and emotionally.
Healing is the hardest thing I do every single day. My symptoms from multiple conditions are more under control now (but still challenging on many days), but what I’m most proud of is the emotional healing I’m doing.
I’ve learned and am still learning:
- to feel my feelings, to let go, to be where I am right now.
- that there can be joy and meaning in my life even among pain; and with patience and accommodations I can still accomplish many of my dreams.
- that healing isn’t linear, to stop comparing myself to others and even to past “versions” of myself.
- to trust myself again, to stop criticizing myself and thinking I’m a burden, to believe in what I’m capable of, to prioritize myself and needs without feeling ashamed of them: MY INHERENT WORTH.
- to stop catastrophizing and living from fear, but instead to live from openness, curiosity, and a knowing that I CAN handle whatever comes my way.
I’ll probably be sick for the rest of my life, but I’m finding peace with that.
And I’m excited, truly excited, at the idea of continuing to heal emotionally, to keep growing, changing, and understanding my patterns, conditioning, and trauma response, and how that shapes my life.
We talk about all of these topics and the self-growth we’ve had in many episodes of our podcast!
Hi, I’m Brittany! I love spending time with my family, baking, and watching my dog play. I have PCOS, gastritis, Celiac disease, and generalized anxiety disorder.
Like Amy, I’ve also come a long way from where I’ve started.
I remember having anxiety since I was 8 years old, missing school because of it, and having a constant stomachache. Over the years, I learned self-managing techniques and saw improvements, but my anxiety has still been a dominant and negative force in my life.
Recently, my anxiety became so severe that it took even further effects on my physical body than usual: I had over a month of menstrual bleeding as well as gastritis. I had to take 2 months off of work, working with a gynecologist, gastroenterologist, mental health professional, and the Curable App (a pain psychology app that I’ve been using for my anxiety and the physical symptoms they cause on my body) to get a hold back on both my physical and mental health.
I’ve been learning how to pause and take a step back from my feelings, relating to them instead of being consumed by them.
I’m checking in with myself more, to have awareness of when my anxiety is rising up so I can use mitigating techniques to bring it down, or if not, ride the anxiety wave non-judgmentally and without shaming myself or panicking about it. With my therapist, I’ve been examining and letting go of long held “truths” that I’ve lived by, such as my perfectionism and many of my irrational fears, which are actually just mistaken beliefs that I hold which are hurting me, and not truths at all.
It’s a slow and often emotionally painful process to crack open who I thought I was and discover who I really am underneath it.
But it’s also a beautiful process and I truly love who I am becoming. Most importantly, I’m practicing meeting all of myself with acceptance, even the parts of me that I’d like to change or see personal growth in.